June 9th is International Batten Disease Awareness Day! Our goal is to honor and support those affected by Batten disease and to raise awareness.
About this event
Join us as we celebrate families around the world and raise awareness! BDSRA is hosting the 2022 International Batten Disease Awareness Day Virtual 5K on June 9th, 2022.
What exactly IS a Virtual 5K?
It is just like any other 5K, except there is no official race location. The virtual part of this means no traveling and no early start times! It also means you get to choose where, with whom, and even how you want to complete the 5K. It can even be done in increments on different days, so keep track of your distance until you hit the 5K.
How to participate to raise funds and awareness
This event is open to individuals of all ages and abilities. Once you register, either as an individual or as part of a team, you are set.
Since this is not a sanctioned event, there is no penalty if you are unable to complete any or all of the 5K. However, during International Batten Disease Awareness Day we will be asking participants to post pictures of themselves on their 5K route. This is completely optional - but since our goal is to bring awareness to Batten disease, we want to do just that. And by using #battenday2022 and tagging @BDSRA on your social media posts, we will be able to keep up with the fun. We will highlight posts tagged with @BDSRA in our June Illuminator which will be published June 30, 2022.
T-Shirts
UPDATE: Due to shipping expenses, we are no longer able to accept international Love.Hope.Cure. T-Shirt orders. All international pre-orders and traditional orders placed through Friday, May 27th will still be shipped. We apologize for this inconvenience and appreciate your patience and support.
Pre-Order (To receive shirt before June 9th):
If you would like a BDSRA Love.Hope.Cure. t-shirt in time to wear for your participation in the 5K June 9th you must register/order before midnight on May 9, 2022! We will be sending the shirts mid/late-May. All orders received after May 9th will be shipped with traditional orders.
(Click here for t-shirt sizing guide, they run small: Fit & Size Charts | BELLA+CANVAS ® )
Traditional Order (To receive shirt after June 9th):
If you would like a BDSRA Love.Hope.Cure. t-shirt to celebrate your participation in the 5K you must register/order before midnight on June 9, 2022! We will be sending the shirts mid-June.
(Click here for t-shirt sizing guide, they run small: Fit & Size Charts | BELLA+CANVAS ® )
To view this year's T-Shirt design click here: T-Shirt Front Design; T-Shirt Back Design