Join us in raising money for Batten Disease research by
Biking for Batten!
Register below for either of our two Bike for Batten events.
Full Rides/Partial rides/No biking options available.
Ride #1: Saturday, September 17th- 9am @ Northwest Nazarene University in Nampa, ID (20mi)
Ride #2: Saturday, September 24th- 9am @ Yep Kanum Park in Colville, WA (18mi)
You can also ride from home and post pictures using the #bikeforbatten hashtag!
"These rides are inspired by my two courageous and amazing nephews. They are Titus and Ely and they both have Batten disease. Titus ran into the arms of Jesus at the age of 6. His parents, Danny and Bekah and little brother, Ely, miss him tremendously. Just two weeks after Titus passed, Ely had the life-giving opportunity to begin an enzyme replacement treatment. This incredible treatment was created by a team of experts who desire to help Batten children have a prolonged and high quality of life. Ely is living proof that the research being done is indeed working! He is still able to walk, eat, and communicate. And this would not be possible without this enzyme replacement therapy. We are forever grateful for the work being done. The research teams and doctors are currently in the midst of finding a treatment to prevent blindness in children as well as gene therapy. There is a lot more work to be done and it is exciting! All funds raised during Bike for Batten will go directly to BDSRA Foundation (Batten Disease Support, Research, and Advocacy). You WILL make a difference in the lives of these amazing children."
Bekah Murphy, Bike For Batten